Helpers and the nursing industry as seen by people with disabilities (1 of the 4 chapters)

The life of the disabled and the helper are inseparable. For the past few years, I have been taking care of helpers for more than 3 hours every day. Therefore, in this article, I would like to write about helpers, home care companies, and home care industry from the perspective of persons with disabilities receiving care.

It should be noted that this article is based solely on my personal experience, and I have no intention of over-generalizing or defaming helpers or home care companies.

Relationship between helpers and people with disabilities

It is difficult to answer the question, “What does a helper like to a disabled person?” It can be said that it is like a family if you pay attention to the aspects of spending a long time together, taking care of me and supporting my life. On the other hand, it is an undeniable fact that there are aspects that cannot be cleared up with such beautiful words. This is because the interests of people with disabilities and helpers are fundamentally different . The more the disabled person demands careful care and flexible service time changes, the more burdened the helper becomes. As a helper, I would like to make it as easy as possible, but then the disabled will be in trouble. It can be said that persons with disabilities and helpers are close in physical distance but far in psychological distance.

However, when it is a completely different from the relationship in which a disabled person who is a “customer” completely controls and orders a helper who is a “worker”. Unlike other industries where “customers” tend to have an advantage, it is better to think that persons with disabilities and helpers are almost equal in the nursing care industry . The reason is considered as follows.

First, it is difficult to measure “quality of care service for people with disabilities”. Their difficulty level, personality, values, and commitment are completely different depending on their physical characteristics, symptoms, and contents of desired care. It is virtually impossible to fairly measure the caregiving ability of helpers and reflect them in salaries. In the first place, the country that established the system of nursing care remuneration paid to home care companies does not assume the concept of quality of care. The amount of money is stipulated only for each rough type of assistance. In the case that a helper treat violently and spell out a person with a disability, and in the case that a helper entertains a person with a disability through a pleasant conversation while maintaining perfect care, their salaries are same. Especially in home care, no boss objectively evaluates the work of the helper. In other words, since there is no incentive for helpers to aim for better care, everything depends on goodwill depending on the mood of the helper.

Secondly, it is unlikely that helpers will seriously listen to the complaints of persons with disabilities . If the quality and attitude of the helper is bad, the disabled person will make a complaint at the home care company to which the helper belongs. However, at present, there is a significant shortage of helpers, so most companies beg helpers to work until they are overworked. Under such circumstances, care providers cannot blame helpers enough because their resignation would be a fatal blow. And even if a helper should be fired, he/she can easily find a new job. So there is no need to seriously listen to the caution from the company. In fact, there is a fierce man who hit disabled people hard for no reason, smoked cigarettes during the service hours, and didn’t care for anything. It seems that he got fired for a long time by rubbing on whether to quit, but the company had being concerned about bad reputation desperately avoided the police, so he still cares at another company with impunity.

Thirdly, from the perspective of the handicapped, helpers hold all the foundations of life. As soon as the helper stops the service even once, all life becomes impossible. Also, the one who lives alone and receives home care in a closed room, like me, cannot easily complain to helpers who hold my own life and death. There is also the fear that if I lose the mood of a helper who has a tantrum, I will be killed at worst. This is by no means an exaggeration. Therefore, depending on the mood of the helper, I must accept a huge amount of physical and mental distress. It is an extremely weak position.

Given this, it cannot be said that persons with disabilities have an advantage over helpers. Nevertheless, I have to get them to cooperate with me. So I must sooth watermark, extol, tilte their self-esteem, and sometimes involve president, head of service delivery, and my care managers(It is better not to rely on them. Rather, they tend to make the problem complicated. ), while using all sorts of wiles the day-to-day tactics Must be done . This has no goals. Even if I think things are looking up, I am spoiled again, yelled at suddenly. someone who I have built a relationship of trust over a long period of time may quit and an awful helper may come in instead. We can only coexist while maintaining a delicate tension that cannot be called neither adversaries nor allies.

Published by Double Techou

"Techou" means "disability certificate" in Japanese.

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